Welcome back to the latest edition of why on Earth is it so hot outside. I looked away for five seconds, and someone said roast. If you need me, I'll be drowning myself in the nearest swimming pool because dear god. Okay, maybe more accurately hiding in the air conditioning because crutches are my life.
My life low-key feels like adventure time meets universe, and the results are going to be pretty fun. I decided to start one of those weight loss shots, so RIP my stomach. I mean, it's not like psych meds haven't already made a mockery out of my digestive system. Haha. All jokes aside, I feel really good. Yes my leg is kind of a giant pain in the ass but the rest of me feels really good. Mental health is good, though I did forget to take my Invega for like a week. My bipolar also cycled, which is 0/10, don't recommend, but she eventually got it together. My hallucinations are making fun of each other at this point. Kidding. Though I've scared the shit out of myself like four times in the last week. It's wild once you don't have hallucinations that you forget how many you actually have. If I had to rate them on most annoying to least annoying, it would be the knocking one being the most annoying. Or maybe it was the guy talking to me. I don't know. Either way, both of them are highly annoying. The funniest one was definitely..... Okay, I can't think of a particularly funny one. I was just pretty amused at all of them.
I definitely didn't have needing a couple of shiny new knee replacements on my 2025 bingo card. Rude, but here we are. We didn't get the results that we wanted. But we did get the results everyone who had seen the x-rays were expecting. I made the joke that my knees were very metal because they have horns. My orthopedic surgeon died laughing because they literally do. So my leg goes chop chop, and then life rolls on.
When they diagnosed me with sarcoidosis a million years ago. We didn't exactly know what that was going to look like for me. It's still a rare autoimmune disease, but no one knew anything about it when I was first diagnosed. So in many ways, I've just been a science experiment. haha. I've been stage four for a really long time, and it's been pretty chill. I've had minor stuff like scarring in my lungs and an increase in granulomas in my legs. But what no one clocked was that it was attacking my knee joints. So ya girl is gonna have her right knee replaced first because it said yeet cartilage and hello osteophytes x 100. So she's what currently has me on crutches, but do you want to know the really funny part? My pain tolerance is so beefy that my leg didn't even hurt until March. She's bone on bone and doing the most, and I had no idea. I'm so amused. I was just bebopping all over the place without issue, and then she said, Ope, no thanks.
I did go to Sonic Temple on crutches because keeping me away from a music festival is never happening. The level of bummed I was when Alice In Chains cancelled their set was hefty. That was like biggest bucket list band on the roster, so now I have to try again. But I did see everything else, which was really cool, and I had dope company to do it with. I saw Insane Clown Posse for the first time, and I will have that Faygo song stuck in my head for the rest of my life. It was so fun, I can totally see why Mike loved them. No, I didn't just call my kid Mike, though Michael was there. Mike is a really dope high school friend I had who died of cancer many moons ago. They were one of his favorite bands, and I wanted to see them just because he loved them. So that was super fun, I'd see them again for sure.
So I'm just chilling and working on losing weight before surgery, as one does. I thought I would be more bothered by it all than I am, so that's cool. I think I'm just comforted by my team and looking forward to being back to normal. Having a major joint replacement really isn't that scary at my age. Cause while I'm really young for it, we heal better than people who are a lot older when they get them done. I still have full extension of my legs and whatnot, so physical therapy will be more of a formality. I'mma do it, of course, but it won't be that bad or, knowing me, that painful. So I'm not sure what the rest of my summer looks like. I'm glad I went to Sonic because that might be my only concert this summer. Unless my stubborn ass decides to go on crutches and just deal with the pain. Which knowing me could happen.
There is, of course, still the question of whether or not the sarcoidosis will attack any more joints. I'm honestly okay with not knowing that answer. Just like life is too short for matching socks. Life is too short to waste time worrying about things you can't change. Worry just gives you a headache when you could be laughing at the millions of timeless moments that make your heart happy. It's easy to get lost in the "Poor Me's," but that's kinda pointless when you look at the big picture. Real talk, this disease will kill me one day. But today isn't that day. Today I'm a happy, healthy 46-year-old doing normal crap like complaining about the weather. And maybe getting a lawn so I can tell kids to stay off of it. haha.
I'm a lucky girl. I get to do all the things I love with people who make life even better every day. I'm going to be that 90-year-old in the front row of the pit cheering on my favorite artists. I mean, I already own the wheelchair, so I'm ready for it.
The biggest lesson I'm taking from all of this is this. Do the thing, buy the thing, laugh until you cry, and enjoy every minute you get. Life goes quick, and you can't get that time back. No one is going to live forever, and it's a privilege to get to make those forever memories. Don't put off to tomorrow what you can do today. We aren't gonna make it home to see the parentals or my tiny, adorable fur niece this summer. People are going to go, home? You grew up in Ohio. Yea home. When you spend so much time in a place with people you love, it eventually feels like home. Florida is always going to be my second home. I've made amazing memories with my kids on those beaches. We've made amazing memories all over the place. We have a favorite restaurant, friends, and family who are there. We sat here in Ohio, glued to the weather, watching the hurricanes tear apart places we'd walked just a month earlier. I could get to the parentals blindfolded at this point. We have the GPS on for funsies, but we all know exactly where we are going.
I've said this my entire life. Friends are the family you make for yourself. We may not get to pick our blood family, adopted for me, but we can and do choose our friends. Choose wisely because sometimes they become part of your legacy.
~Until next time, be good to each other.~
If you're new here, welcome, and no, the title never has anything to do with the blog. It's a tradition that we have always had and find hilarious. ☺